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Reflecting on 2025

As 2025 comes to an end, we would like to take a moment to reflect upon the year.

We are thankful for our IIH community and for sharing your medical journey with us. It is because of all of you, we can help spread awareness to this underdiagnosed neurological disorder. Your voice has been heard around the world. 

We are grateful for your feedback. IIH-Hub will continue to host physicians who are dedicated to the research and management of IIH, sharing their expertise and experience through our webinar series. We appreciate our physicians and providers for dedicating time and attention to IIH.

Our goals for 2026 are to continue to share up-to-date evidence-based information on IIH, continue to grow our database of IIH providers, and to share any helpful information on this neurological disorder. 

We wish everyone a healthy and happy new year. 

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Patient stories

“Living with IIH feels like being part of an experiment none of us signed up for. I’ve had to become an informed self-advocate and stay open to challenging my own assumptions, remaining flexible when things change.”
“IIH has taught me gratitude and how to enjoy the moment. You always think life just flows along, but suddenly you`re ripped out of your normal routine.”

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