Latest Articles
October 17, 2024
Dan McQueen shares his story and learnings from multiple brain surgeries....
October 1, 2024
For IIH awareness month, we asked the IIH community what questions they have on this neurological condition....
September 12, 2024
We’re celebrating IIH Awareness month with a webinar on September 16 focused on common questions on IIH!...
August 29, 2024
September is dedicated to increasing attention to IIH to promote education, early diagnosis, proper intervention, and research....
Myth
Weight loss does not improve IIH
Fact
Obese women who had a decrease of 5-10% of total body weight experienced a reversal of symptoms associated with IIH
Myth
IIH only affects women
Fact
Though most commonly diagnosed in women, IIH is found in men too.
Patient Stories
Resources
May 8, 2024
With the help of the IIH community, we have created a Patient Journey webpage to support IIH patients and caregivers....
April 25, 2024
IIH Patient Nicole Rodriguez shares her valuable insights on navigating through the US healthcare system while living with a rare condition...
April 9, 2024
Learn helpful tips to support your patient journey from symptom to diagnosis...
February 22, 2024
Take part in our next IIH Community Chat Session as we discuss what it is like to navigate through the healthcare system...
You are not alone
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