Latest Articles
April 30, 2026
Key insights from our patient-focused webinar on living with IIH and using GLP-1's...
February 25, 2026
This Rare Disease Day, we recognize the millions living with rare conditions, including Idiopathic Intracranial Hypertension (IIH)...
January 1, 2026
As 2025 comes to an end, we would like to take a moment to reflect upon the year....
December 11, 2025
A general overview of cerebrospinal fluid's complexities and pathophysiology....
Myth
Weight loss does not improve IIH
Fact
Obese women who had a decrease of 5-10% of total body weight experienced a reversal of symptoms associated with IIH
Myth
IIH only affects women
Fact
Though most commonly diagnosed in women, IIH is found in men too.
Patient Stories
“Living with IIH feels like being part of an experiment none of us signed up for. I’ve had to become an informed self-advocate and stay open to challenging my own assumptions, remaining flexible when things change.”
Resources
July 31, 2025
Eye care professionals are uniquely positioned to catch early warning signs and prevent permanent vision loss from IIH...
July 10, 2025
Practical tips for managing IIH symptoms and avoiding flare-ups...
April 23, 2025
The Eye-Q Podcast and the Eye Health Summit offer helpful information for IIH patients and providers...
March 20, 2025
Dr. Jamie Wright is living proof that you are stronger than you think....
You are not alone
This hub is filled with resources to help you navigate IIH. Sign up for our mailing list to receive monthly updates about new tools and resources.
