Latest Articles
April 25, 2024
IIH Patient Nicole Rodriguez shares her valuable insights on navigating through the US healthcare system while living with a rare condition...
April 9, 2024
Learn helpful tips to support your patient journey from symptom to diagnosis...
February 22, 2024
Take part in our next IIH Community Chat Session as we discuss what it is like to navigate through the healthcare system...
January 9, 2024
With your feedback, we make new goals for our website and media outlets for 2024...
Myth
Weight loss does not improve IIH
Fact
Obese women who had a decrease of 5-10% of total body weight experienced a reversal of symptoms associated with IIH
Myth
IIH only affects women
Fact
Though most commonly diagnosed in women, IIH is found in men too.
Patient Stories
Resources
September 14, 2023
The IIH Community Chat provided an open forum where attendees shared their journey from symptom to diagnosis and their current medical status...
August 31, 2023
Join us in September to bring attention to this disabling neurological condition that affects over 1 in every 50,000 people globally....
August 2, 2023
Ranging from mild to severe, signs and symptoms of IIH can turn into debilitating complications if left untreated....
June 8, 2023
Most associated conditions with IIH are from disease processes or medications that cause increased pressure within the brain...
You are not alone
This hub is filled with resources to help you navigate IIH. Sign up for our mailing list to receive monthly updates about new tools and resources.
