Latest Articles
January 9, 2025
2025 marks the third year since we were welcomed into the IIH community....
November 21, 2024
Here we summarize a recent medical publication on lumbocaval shunts for patients with IIH...
October 31, 2024
There is no approved drug or medical device to treat or address IIH. We would like to change that....
October 17, 2024
Dan McQueen shares his story and learnings from multiple brain surgeries....
Myth
Weight loss does not improve IIH
Fact
Obese women who had a decrease of 5-10% of total body weight experienced a reversal of symptoms associated with IIH
Myth
IIH only affects women
Fact
Though most commonly diagnosed in women, IIH is found in men too.
Patient Stories
Resources
June 26, 2024
Helpful tips to prepare you for an emergency situation before Mother Nature takes action....
June 2, 2024
It’s easy to say the glass is half full, but really believing it is the basis of positive psychology....
May 23, 2024
Learn how GLP-1 RAs work in the body and clinical data that may support use by IIH patients....
May 8, 2024
With the help of the IIH community, we have created a Patient Journey webpage to support IIH patients and caregivers....
You are not alone
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