Since 2009, September has been recognized as idiopathicThe term idiopathic is used when there is no detectable reason for something. Click the term to read more intracranial hypertension (IIH) awareness month. We would like to acknowledge two organizations, the Intracranial Hypertension Research Foundation (IHRF) and the IH Brain Pain Team, for creating a space in the interest of elevated brain pressures and for bringing attention to this neurological disease.
Idiopathic intracranial hypertension (IIH) is diagnosed by a strict criteria, the modified Dandy criteriaCriteria used for diagnosing patients with IIH. Click the term to read more. It is commonly associated with women but can also be seen in men and children. In the medical literature it is often described as a condition that affects obese women of child-bearing age but we know IIH can affect any age, gender and weight. The name idiopathic can be misleading, meaning no singular finding or lesion can pinpoint the cause of elevated intracranial pressures. However we know with the latest research that venous sinus stenosis and abnormalities of the glymphatic system of the brain prove an anatomical and pathophysiological cause for IIH.
Since 2022, IIH-Hub.com was created to provide attention, resources, and community with those who are diagnosed or undiagnosed with IIH.
Over 2 years ago, IIH-Hub started a webinar series on topics that are IIH-related with speakers who are renowned in the field of research, education and management of this condition. To honor IIH awareness month this year, every Monday in the month of September our social media handles will be featuring some of the most influential and popular clips to continue to educate the public.
On September 8th at 8:00 am EST we will be hosting a Q&A session with neuro-ophthalmologistMedical doctor who specializes in neurological conditions that affect vision. They can diagnose and treat conditions related to the optic nerve. Click the term to read more, Dr. Mark Kupersmith and moderated by Dr. Pierre Gobin. Click here to register for this free event, open to both patients and providers.
At IIH-Hub, our mission is to bring the latest, evidence-based information on IIH with the hopes of increasing awareness and advocacy and hope for a cure. 💙💚
