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Live Webinar Series: Emerging Updates and Research on IIH

An open forum for questions and discussion for anyone interested in getting in-depth information on this chronic condition

We are excited to announce that IIH-Hub and Serenity Medical will be hosting our first ever lecture series dedicated to idiopathic intracranial hypertension (IIH). It will be a live webinar event held every two weeks open to providers, patients, and anyone with an interest in getting in-depth information on this chronic condition. We hope it will promote a forum for questions and discussion on this neurological disorder.

The topics that will be presented over the next few months will be:

  • What is IIH
  • Venous sinus stenosis
  • Fulminant IIH
  • Ophthalmology’s contribution to the diagnosis of IIH
  • Noninvasive findings of IIH
  • The glymphatic system
  • Venous manometry

The presenters of our topics are physicians who were chosen because they have an interest in treating IIH and have participated in IIH research. They are experts in the fields of neurosurgery, neuroradiology, interventional neuroradiology, and ophthalmology.

Register for the webinar series.

IIH is described as a rare condition but it is likely underdiagnosed. Reasons for its unfamiliarity in the medical community is because it does not have a known cause, therefore idiopathic. When there are a group of symptoms that do not have a scientific cause, it is difficult to diagnose and treat. Currently the modified Dandy criteria is used to diagnose IIH but there are a number of people who do not quite meet this criteria but may still benefit from treatment that is given to those who do.

Our mission is to increase awareness and promote research of IIH in hopes to find better treatment and a better understanding of this disabling condition.

Our first lecture is geared towards physicians and features Dr. Ricardo Komotar presenting on How to Build a Specialty Practice (January 23 at 9am EST). Future lectures will be more patient-centered and we will update our website and social media with the subsequent topics, dates, and times. If you miss any of our live lectures, we will also be uploading the presentation on our website for you to visit at any time.

Click here if you would like to register for this event, which will also add you to our newsletter with the latest IIH articles and research.

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There is no approved drug or medical device to treat or address IIH. We would like to change that....

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Patient stories

Jim

“My instincts told me that I had to keep pushing and that I had to keep my body as active as possible because I didn’t know where all of this was leading. “
“I know everyone says to trust your gut, so I’ll say trust your headache. Your pain is real, and ‘borderline-ish’ does not serve anyone.”

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