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Reflecting on 2025

As 2025 comes to an end, we would like to take a moment to reflect upon the year.

We are thankful for our IIH community and for sharing your medical journey with us. It is because of all of you, we can help spread awareness to this underdiagnosed neurological disorder. Your voice has been heard around the world. 

We are grateful for your feedback. IIH-Hub will continue to host physicians who are dedicated to the research and management of IIH, sharing their expertise and experience through our webinar series. We appreciate our physicians and providers for dedicating time and attention to IIH.

Our goals for 2026 are to continue to share up-to-date evidence-based information on IIH, continue to grow our database of IIH providers, and to share any helpful information on this neurological disorder. 

We wish everyone a healthy and happy new year. 

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Patient stories

“This journey has been painful, exhausting, and uncertain, and I am still seeking lasting relief. But I refuse to be defined solely by my diagnosis.”

Jim

“My instincts told me that I had to keep pushing and that I had to keep my body as active as possible because I didn’t know where all of this was leading. “

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Pulsatile Tinnitus and Venous Diverticulum

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