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Celebrating IIH Awareness Month

September is dedicated to increasing attention to IIH to promote education, early diagnosis, proper intervention, and research.

Idiopathic intracranial hypertension (IIH) is a rare neurological disorder that predominantly affects women who are in their child-bearing years. It can also occur in men, in those with normal body weight, and without fully meeting the Dandy criteria

September is dedicated to increasing attention to IIH to promote education, early diagnosis, proper intervention, and research for this condition. 

Raising awareness for IIH creates a community for those affected by this chronic illness. You are not alone, you have support from your friends, family, coworkers, and so many who have shared their story with us. 

At IIH-Hub, our ambition is to share medical information to both providers and patients alike to learn everything we know about IIH. We host physicians who care for those with IIH and researchers who continue to push the envelope. IIH-Hub will continue to host live webinars on IIH-related topics to discuss diagnostic criteria, testing, and new therapies for this rare disease.

We hope to see you at our next webinar. If you would like to see what we have featured in the past, you can visit our YouTube channel. If you would like to receive emails with the latest IIH-related information, click here to subscribe to our newsletter. 

If you or a loved one has IIH and would like to share your story through our platform, you can reach out to our team here

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There is no approved drug or medical device to treat or address IIH. We would like to change that....

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Patient stories

“I know everyone says to trust your gut, so I’ll say trust your headache. Your pain is real, and ‘borderline-ish’ does not serve anyone.”
“Knowing your diagnosis and following the latest science and research is crucial in a world where you will encounter medical professionals who have never seen an IIH case.”

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