Want to dive even deeper? Check out our

Celebrating IIH Awareness Month

September is dedicated to increasing attention to IIH to promote education, early diagnosis, proper intervention, and research.

Idiopathic intracranial hypertension (IIH) is a rare neurological disorder that predominantly affects women who are in their child-bearing years. It can also occur in men, in those with normal body weight, and without fully meeting the Dandy criteria

September is dedicated to increasing attention to IIH to promote education, early diagnosis, proper intervention, and research for this condition. 

Raising awareness for IIH creates a community for those affected by this chronic illness. You are not alone, you have support from your friends, family, coworkers, and so many who have shared their story with us. 

At IIH-Hub, our ambition is to share medical information to both providers and patients alike to learn everything we know about IIH. We host physicians who care for those with IIH and researchers who continue to push the envelope. IIH-Hub will continue to host live webinars on IIH-related topics to discuss diagnostic criteria, testing, and new therapies for this rare disease.

We hope to see you at our next webinar. If you would like to see what we have featured in the past, you can visit our YouTube channel. If you would like to receive emails with the latest IIH-related information, click here to subscribe to our newsletter. 

If you or a loved one has IIH and would like to share your story through our platform, you can reach out to our team here

Related articles

patient survey IIH
October 31, 2024
There is no approved drug or medical device to treat or address IIH. We would like to change that....

You are not alone

This hub is filled with resources to help you navigate IIH. Sign up for our mailing list to receive monthly updates about new tools and resources.

Patient stories

Jim

“My instincts told me that I had to keep pushing and that I had to keep my body as active as possible because I didn’t know where all of this was leading. “
“I know everyone says to trust your gut, so I’ll say trust your headache. Your pain is real, and ‘borderline-ish’ does not serve anyone.”

Like what you are seeing?

Join our next webinar.

Thank you! You’re registration is complete for:

IIH Practitioner Series

New lecture will be announced soon