Want to dive even deeper? Check out our

“After Years of Being Unheard…”

IIH patient describes her diagnosis journey and living with IIH

Youtube video

Chaniya Wigfall met with six doctors before her diagnosis of IIH. We sat down with Chaniya to learn more about her journey to diagnosis and living with IIH – watch here.

Thank you Chaniya for sharing with us!

 

 

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Patient stories

“Living with IIH feels like being part of an experiment none of us signed up for. I’ve had to become an informed self-advocate and stay open to challenging my own assumptions, remaining flexible when things change.”

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