Long Archives - IIH Hub

“I know everyone says to trust your gut, so I’ll say trust your headache. Your pain is real, and ‘borderline-ish’ does not serve anyone.”

“It’s challenging to describe this invisible illness and the severity of how living in chronic pain everyday can change one’s life.”

“I was aware that the recovery from this rare life changing and challenging condition was also a rollercoaster recovery.”

“Don’t be scared to take loved ones to medical appointments if needed and don’t be afraid to ask for help when you are struggling.”

“As I’ve started a healthier lifestyle, I don’t feel that IIH is necessarily weight related, but more so related to what we eat.”

“I have my life back and I wouldn’t change a thing.”

“I can tell you it gets better! You will adjust to your new normal and you will kick this awful illness in the ass! “

“I would tell someone who has just received a diagnosis, what I wish someone had said to me at the start of my journey…you are not alone. “