Long Archives - IIH Hub

Jim

“My instincts told me that I had to keep pushing and that I had to keep my body as active as possible because I didn’t know where all of this was leading. “

Nicole

“I know everyone says to trust your gut, so I’ll say trust your headache. Your pain is real, and ‘borderline-ish’ does not serve anyone.”

Alicia

“It’s challenging to describe this invisible illness and the severity of how living in chronic pain everyday can change one’s life.”

Kiki

“I was aware that the recovery from this rare life changing and challenging condition was also a rollercoaster recovery.”

Morgan

“Don’t be scared to take loved ones to medical appointments if needed and don’t be afraid to ask for help when you are struggling.”

Ashley Carter

“As I’ve started a healthier lifestyle, I don’t feel that IIH is necessarily weight related, but more so related to what we eat.”

Chaniya Wigfall

“I have my life back and I wouldn’t change a thing.”

Candace Sawicki

“I can tell you it gets better! You will adjust to your new normal and you will kick this awful illness in the ass! “

Ashlee Dyer

“I would tell someone who has just received a diagnosis, what I wish someone had said to me at the start of my journey…you are not alone. “