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Chat Session: Navigating the healthcare system with IIH

April 25, 2024

Take part in our IIH Community Chat Session as we discuss what it is like to navigate through the healthcare system. This chat session is open to everyone in the IIH Community (patients, caregivers, and physicians).

We hope to encourage sharing valuable insights on:

  • What it is like to navigate through the US healthcare system while living with a rare condition.
  • What the referral process through insurance is like.
  • Give first hand experience from an IIH patient who has combined her experience as a User Experience Designer to enhance her ability to advocate for herself and to deal with pain points through her medical journey.
  • Share a template of what Nicole uses to help go from provider to provider without getting lost in the complex process.

We hope this chat session will help others who are in the process of finding an answer to their symptoms – learn more here.

Nicole Rodriguez

IIH Patient

Nicole became an IIH patient in 2023. As a user experience designer, she relies on research and collaboration to support others. She uses a similar approach to navigate chronic illness and advocate for herself. When she’s not scheduling or attending appointments you’ll find her immersed in podcasts, digging in her garden, or planning her next adventure.

Edith Ruiz Snelling, PA-C


Edith is a certified physician assistant with over 14 years of clinical experience, including the care of neurological surgery and bariatric surgery patients. Additionally, she has several years of experience as a medical writer for healthcare companies to help connect patients to medical information.

Idiopathic Intracranial Hypertension (IIH) is an underdiagnosed and undertreated disorder of elevated pressure within the brain without an identifiable cause. The IIH Practioner Series is designed for neurologists, neurosurgeons, neuro-interventionalists, endovascular surgeons, interventionist radiologists, neuroradiologists, ophthalmologists, optometrists, and ENT specialists.

Sponsored by

Novel neurovascular therapies for idiopathic intracranial hypertension (IIH)