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Thank You IIH Community!

2025 marks the third year since we were welcomed into the IIH community

We want to extend a warm thank you for allowing us to share your medical journeys and stories through our platforms. We are grateful that you visit and share the evidence-based resources that our website holds and are thankful for your active participation during our webinars. 

We will continue to be a resource for this underdiagnosed neurological condition and to share any information and updates regarding IIH and IIH-related disorders

For the new year we hope for advances in medical technology and improvements in the diagnosis and treatment for idiopathic intracranial hypertension (IIH). We will to continue to connect the community with the latest research that can impact this disease.

This year we will also continue to host physicians and practitioners who understand the spectrum of IIH, to discuss their experience and answer audience questions.

On Wednesday January 22nd, we are honored to bring back Dr. Nicole Plenty to discuss Fertility, Hormones and IIH. She is an Obstetrician & Gynecologist and a Maternal Fetal Medicine Physician in Houston, Texas. We hosted her December 2023 where she discussed IIH and Pregnancy. You can pre-register for this free webinar here.

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Patient stories

“IIH has taught me gratitude and how to enjoy the moment. You always think life just flows along, but suddenly you`re ripped out of your normal routine.”
“This journey has been painful, exhausting, and uncertain, and I am still seeking lasting relief. But I refuse to be defined solely by my diagnosis.”

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IIH and GLP-1's: Patient Experience

March 25 at 9 am ET