The month of February is dedicated to love and friendship. It is also observed as Rare Disease Month. The second month of the New Year is a great time to continue or start your resolutions or goals. It is also a great month to give yourself some self-love.
“Self-love… is more emotional and spiritual. It’s a general feeling of self-appreciation, of valuing yourself and your place in the world.”₁
Taking time for yourself when you have a chronic disease like idiopathicThe term idiopathic is used when there is no detectable reason for something. intracranial hypertension (IIH) usually is placed on the lowest level of importance when a flare-up forces missed work, school and countless important events in your life. It seems impossible to use a personal day to relax and do pleasant things that you enjoy. Having compassion for yourself is a great way to begin self-love.
“…is more than face masks and bubble baths. It’s messy, it’s uncomfortable. Sometimes it’s taking naps and not getting enough school work done because that’s what my body needs.”₂
Forgiving yourself: Start by giving yourself as many free passes as you need. Don’t feel bad for saying no or for not giving a reason why you can’t make an event. Your loved ones will understand without hesitation.
Rewarding yourself: By giving yourself a high-five for any achievement, you will feel accomplished. Whether it’s meeting a personal goal or a work/school deadline, treating yourself with a small gift or experience will bring light to your day.
Accepting yourself: A chronic illness does not define you. Empower yourself by doing the things that bring self-fulfillment. You still possess natural and beautiful talents that should not be forgotten.
Having IIH requires countless hours of appointments, organization, education, and advocacy. In between those moments take a moment to know that you are loved and you are not alone.
