The month of February is dedicated to love and friendship. It is also observed as Rare Disease Month. The second month of the New Year is a great time to continue or start your resolutions or goals. It is also a great month to give yourself some self-love.
“Self-love… is more emotional and spiritual. It’s a general feeling of self-appreciation, of valuing yourself and your place in the world.”₁
Taking time for yourself when you have a chronic disease like idiopathicThe term idiopathic is used when there is no detectable reason for something. Click the term to read more intracranial hypertension (IIH) usually is placed on the lowest level of importance when a flare-up forces missed work, school and countless important events in your life. It seems impossible to use a personal day to relax and do pleasant things that you enjoy. Having compassion for yourself is a great way to begin self-love.
“…is more than face masks and bubble baths. It’s messy, it’s uncomfortable. Sometimes it’s taking naps and not getting enough school work done because that’s what my body needs.”₂
Forgiving yourself: Start by giving yourself as many free passes as you need. Don’t feel bad for saying no or for not giving a reason why you can’t make an event. Your loved ones will understand without hesitation.
Rewarding yourself: By giving yourself a high-five for any achievement, you will feel accomplished. Whether it’s meeting a personal goal or a work/school deadline, treating yourself with a small gift or experience will bring light to your day.
Accepting yourself: A chronic illness does not define you. Empower yourself by doing the things that bring self-fulfillment. You still possess natural and beautiful talents that should not be forgotten.
Having IIH requires countless hours of appointments, organization, education, and advocacy. In between those moments take a moment to know that you are loved and you are not alone.
