Want to dive even deeper? Check out our

Our Wish for 2023

We’re looking forward to the New Year and continuing to support the IIH community.

At IIH-Hub we made a few New Year’s Resolutions for 2023. Our main goal is to keep the community informed on Idiopathic Intracranial Hypertension (IIH). Here is what we hope to accomplish in the New Year:

  1. We will continue to release evidence-based information on IIH as soon as we find it. Access to information is easy with the internet but sometimes is not easy to interpret or it can be misinterpreted. As we encounter information related to IIH, we resolve to have it available on our website in a timely manner. We will also publish articles where this information is easy to understand.
  2. We will host a live webinar series to educate the community on IIH. The goal of our webinars is to host experts in the field of IIH. We will ask them to explain the latest research and breakthroughs in medicine related to IIH. We hope both patients and providers alike will attend and actively participate in these webinars.
  3. We will continue to search for people with IIH and share their story. Without you, we would have no website. We are grateful for everyone who has been kind in sharing their IIH journey. By sharing your story, you have helped our community have a better understanding of what it is like to suffer from this condition. As our followers continue to grow, we can continue to spread awareness.
  4. We plan on creating a patient and provider list. Our hope is to have a page on our website dedicated to practitioners who are proficient in diagnosing, treating, and managing IIH. We would also like to have a page dedicated to patients and their advocates who are looking for specialists in IIH. Combined, this network should help connect patients to providers and bridge the gap of delayed, misdiagnosed, or untreated intracranial hypertension and its related conditions.

We look forward to welcoming the New Year with you. We will continue to make IIH awareness and education our priority. We thank you all for your support and contribution to our patient stories, for following us on social media (Twitter, Instagram and YouTube), and your comments. We would also like to thank our providers for the physician articles and access to the latest research in IIH. If you would like to stay informed, subscribe to our newsletter.

 

HAPPY NEW YEAR! 

Sincerely,

The Team at IIH-Hub.com 

 

Related articles

women with a laptop writing a note
February 22, 2024
Take part in our next IIH Community Chat Session as we discuss what it is like to navigate through the healthcare system...

You are not alone

This hub is filled with resources to help you navigate IIH. Sign up for our mailing list to receive monthly updates about new tools and resources.

Patient stories

“Knowing your diagnosis and following the latest science and research is crucial in a world where you will encounter medical professionals who have never seen an IIH case.”
“It’s challenging to describe this invisible illness and the severity of how living in chronic pain everyday can change one’s life.”

Like what you are seeing?

Join our next webinar.

Thank you! You’re registration is complete for:

IIH Community Chat

Discussion on navigating through the healthcare system

Coming in April