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Migraine Collective: a patient-to-patient resource

Chat, information, support and referrals for people living with migraine and headache disorders

Introducing the Migraine Collective! This amazing patient-to-patient resource supports those living with migraine and headache disorders via online chat forums, support resources and referral information.

The Migraine Collective is hosting a live chat about IIH on Wednesday, September 28 between 7:00 – 9:00 pm ET on their chat forum. Make sure to follow their Instagram, @migrainecollective, for updates and more information about their great resources.

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May 8, 2024
With the help of the IIH community we have created a Patient Journey webpage to support IIH patients and caregivers...

You are not alone

This hub is filled with resources to help you navigate IIH. Sign up for our mailing list to receive monthly updates about new tools and resources.

Patient stories

“I know everyone says to trust your gut, so I’ll say trust your headache. Your pain is real, and ‘borderline-ish’ does not serve anyone.”
“Knowing your diagnosis and following the latest science and research is crucial in a world where you will encounter medical professionals who have never seen an IIH case.”

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