We are looking for a two or three people who and experience moderate to severe IdiopathicThe term idiopathic is used when there is no detectable reason for something. Intracranial Hypertension (IIH) symptoms who would be willing to spend about 30 minutes with some researchers at Duke University. The researchers are designing a survey that we will then send to many IIH patients. Our hope is that this survey will help the people who approve treatments better understand what IIH patients experience on a daily basis. Unfortunately we cannot compensate people for chatting with the researchers but we believe/hope that ensuring that people understand the challenges faced by IIH patients will benefit the community over the long term.
If you are interested or would like to learn more about this, please email our team.
